Our Humanitarian Program

Whether it’s a village of 100 families devastated by floods in Turkey or one teenager in India suffering with a rare disease, the Foundation S humanitarian program is designed to strategically pivot and help.

It’s estimated that by 2050, 143 million more climate-related migrants will come from Latin America, sub-Saharan Africa, and Southeast Asia, three regions critically impacted by climate change. We break down silos to collectively have the greatest impact for those facing crisis. And we have made progress, including developing emergency preparedness protocols and being an inaugural member of WHO Foundation’s Health Emergencies Alliance. We aim to facilitate a transition from a reactive to a proactive medicine donation approach and boost efficiency, even in less severe, ongoing crises.

Foundation S’ Rare Humanitarian Program is the first, largest and longest-running  humanitarian initiative for people with lysosomal storage disorders. It provides access to free treatments for people who would not have access to such treatments, as well as supporting patient diagnosis, treatment monitoring, patient advocacy and physician education.

Those with severe hemophilia in the developing world often do not survive to adulthood, or face a life of disability, isolation, and chronic pain. Foundation S believes all patients should have access to care regardless of where they live. Together with Sobi, we pledged to donate up to 1 billion IUs of factor therapy over a ten-year period to the World Federation of Hemophilia (WFH) Humanitarian Aid Program. This is the single largest donation of hemophilia factor therapy in history.

We know how to provide sustainable, long-lasting support to individuals with a rare disease or immediate relief to a large community ravaged by climate change. Simply put, our holistic approach is designed to address an increasingly complex humanitarian environment.